Executive Summary

November 21, 2023

Executive Summaries

Overview of the goals and value of CCSC

View this quick payer fact sheet to learn more about VWD

March 8, 2024

Fact Sheets / News & Events

NEW resource on Von Willebrand Disease (VWD) for payers. Check out this quick primer to better understand the prevalence and impact of VWD on patients and the healthcare system.

CCSC News Update – 2023 Year in Review

January 22, 2024

News & Events

Check out the latest CCSC News Update featuring a review of the 2023 updates and activities and see what to expect in 2024.

CCSC Hemophilia Response Tool Kit

January 16, 2024

Tool Kits

A resource for payers to assure optimal outcomes are achieved at the lowest total cost of care

Lived Experience Experts

January 10, 2024

Fact Sheets

CCSC overview for lived experience experts and community members

CCSC Roadmap for State Stakeholders

January 10, 2024

Fact Sheets

Overview of CCSC and the importance of HTCs for State Stakeholders

CCSC Benefits for Providers

January 10, 2024

Fact Sheets

Fact sheet highlighting why providers should participate in CCSC

CCSC Benefits for Payers

January 10, 2024

Fact Sheets

Fact sheet highlighting why payers should participate in CCSC

CCSC News Update Collaborating for Patient Access

January 10, 2024

e-Newsletters

Collaborating for Patient Access and Optimal Outcomes: Key Takeaways from the CCSC Symposium at the 75th Annual Bleeding Disorders Conference

CCSC News Update for Employers

January 10, 2024

e-Newsletters

Archived CCSC e-newsletter on managing costs and outcomes among

CCSC News Update on COVID-19

January 10, 2024

e-Newsletters

Archived CCSC e-newsletter on the impact of COVID-19 on the bleeding disorders community

CCSC News Update June 2021

January 10, 2024

e-Newsletters

Archived CCSC e-newsletter with program updates from June 2021

Copay Accumulators and the Impact on High-Cost, Rare Diseases

January 2, 2024

Archived EVENTS / Videos

Archive from a live webcast highlighting the unintended consequences of copay accumulator adjustment programs in rare diseases

HTC Success in a Value-Based Health Care Environment: Findings from the CCSC

January 2, 2024

Archived EVENTS / Videos

Archive from a live webcast providing an overview of CCSC and the value of HTCs

Hemophilia and Bleeding Disorders: Plan Design Strategies that Address Costs, Waste, and Improve Outcomes

January 2, 2024

Archived EVENTS / Videos

Archive from a live webcast in partnership with the Midwest Business Group on Health

Koffee Talk with Kollet Koulianos, MBA — CCSC Part 8B: Closing Comments

December 17, 2023

Videos

Podcast-style discussion: Key takeaways with Becky Burns, Bleeding & Clotting Disorders Institute, and Jennifer Borrillo, MSW, LCSW, MBA, Tulane (less than ~1 minute)

Koffee Talk with Kollet Koulianos, MBA — CCSC Part 8A: Closing Comments

December 17, 2023

Videos

Podcast-style discussion: Key takeaways with Becky Burns, Bleeding & Clotting Disorders Institute, and Jennifer Borrillo, MSW, LCSW, MBA, Tulane (less than ~1 minute)

Koffee Talk with Kollet Koulianos, MBA — CCSC Part 7: Benefits of Joining CCSC

December 17, 2023

Videos

Podcast-style discussion: Review of the benefits of engaging with CCSC, with Becky Burns, Bleeding & Clotting Disorders Institute, and Jennifer Borrillo, MSW, LCSW, MBA, Tulane (~3 minutes)

Koffee Talk with Kollet Koulianos, MBA — CCSC Part 6: Translating Data to Show Best Practice Management to Payers

December 17, 2023

Videos

Podcast-style discussion: How HTCs can use their data to show best practice management strategies, with Becky Burns, Bleeding & Clotting Disorders Institute, and Jennifer Borrillo, MSW, LCSW, MBA, Tulane (~3 minutes)

Koffee Talk with Kollet Koulianos, MBA — CCSC Part 5: Real-time Collaboration Between HTCs and Payers

December 17, 2023

Videos

Podcast-style discussion: Opportunities for HTC and payer collaboration with Becky Burns, Bleeding & Clotting Disorders Institute (~1 minute)

Koffee Talk with Kollet Koulianos, MBA — CCSC Part 4: Helping Tell the HTC’s Story to Payers

December 17, 2023

Videos

Podcast-style discussion: Steps to help HTC’s tell their value story, with Jennifer Borrillo, MSW, LCSW, MBA, Tulane (~5 minutes)

Koffee Talk with Kollet Koulianos, MBA — CCSC Part 3B: BCDI and Tulane’s Experience with CCSC

December 17, 2023

Videos

Podcast-style discussion: HTC benefits to partnering with CCSC, with Becky Burns, Bleeding & Clotting Disorders Institute, and Jennifer Borrillo, MSW, LCSW, MBA, Tulane (~less than 1 minute)

Koffee Talk with Kollet Koulianos, MBA — CCSC Part 3A: BCDI and Tulane’s Experience with CCSC

December 17, 2023

Videos

Podcast-style discussion: HTC benefits to partnering with CCSC, with Becky Burns, Bleeding & Clotting Disorders Institute, and Jennifer Borrillo, MSW, LCSW, MBA, Tulane (~1 minute)

Koffee Talk with Kollet Koulianos, MBA — CCSC Part 2: Clarity of What We Mean by Data Sharing

December 17, 2023

Videos

Podcast-style discussion: How HTCs can use their data to support their value story with Becky Burns, Bleeding & Clotting Disorders Institute (~2 minutes)

Koffee Talk with Kollet Koulianos, MBA — CCSC Part 1: NBDF’s Role and the Importance of CCSC

December 17, 2023

Videos

Podcast-style discussion: Value of CCSC with Becky Burns, Bleeding & Clotting Disorders Institute, and Jennifer Borrillo, MSW, LCSW, MBA, Tulane (~2 minutes)

Koffee Talk with Kollet Koulianos, MBA – CAAPs Part 6: Survey Results

December 17, 2023

Videos

Podcast-style discussion: Review of CAAPs survey data with Jason Parrott, MBA, MSMOB, Vida Health  (~3 minutes)