The Comprehensive Care Sustainability Collaborative (CCSC) convened in 2014 with two inaugural consensus meetings among health care stakeholders. The aim was to develop a framework for pilot programs that could be replicated across the United States between payers and hemophilia treatment centers (HTCs) to facilitate cost-effective hemophilia management integrating the HTC comprehensive care model.
The HTCs' comprehensive care management and documented ability to achieve quality care with improved outcomes served as a discussion focal point for both meetings, as well as payers' perspectives on the specialty drug forecast and the management of hemophilia. The ongoing CCSC initiative is sponsored by the National Hemophilia Foundation (NHF) in conjunction with Impact Education, LLC, and is supported by charitable donations from founding supporter, Shire, and additional support from Bioverativ, Genentech, Inc., Novo Nordisk, Inc., and Pfizer Inc.
Advance the collaboration between payers and providers in order to provide quality care to patients that is both effective and reimbursable
Achieve data validating relationships between payers and Hemophilia Treatment Center (HTCs) that will benefit patients when they collaborate
Implement initiatives throughout the United States between payers and HTCs that support the sustainability of HTCs and the comprehensive care model
The initial findings of the CCSC consensus meetings are presented in the following white paper to summarize the collective recommendations of the advisory board and outline action steps for the future.
CCSC advisors' expert feedback and consensus to facilitate cost-effective hemophilia management integrating the HTC comprehensive care model
Analysis of the current state of hemophilia care and the benefits of the comprehensive care model
Discussion regarding competitive factor pricing and a more thorough understanding of the role of 340B pricing in funding ancillary services provided at HTCs were key components of the centers' overall "value story."
Recommended HTC- and payer-reported metrics to facilitate information sharing across multiple health care stakeholders
Request a copy of the White Paper Today
Pilot Program Training and Education Webcast Archive Archive of the live training and education webcast which took place on November 10, 2016.
Explain the goals and benefits of CCSC Pilot Program participation
Discuss current CCSC initiatives and related success factors
Outline a step-by-step process including evaluation criteria and reporting
Review training and support opportunities offered through the National Hemophilia Foundation (NHF)
Jointly sponsored by
Supported by a charitable donation from Shire.
James Kenney, Jr., RPh, MBA Manager, Specialty and Pharmacy Contracts Harvard Pilgrim Health Care
Kollet Koulianos, MBA Senior Director Payer Relations National Hemophilia Foundation
Vanita Pindolia, PharmD, BCPS Vice President, Ambulatory Clinical Pharmacy Programs_PCM Henry Ford Health System/Health Alliance Plan of Michigan
Michelle Witkop, DNP, FNP-BC Head of Research National Hemophilia Foundation Doctor of Nursing Practice Bleeding Disorders Nurse Practitioner Northern Regional Bleeding Disorders Center Munson Medical Center
Charting a Course for Cost-effective Improved Hemophilia Outcomes
The virtual symposium highlights Hemophilia Treatment Centers' comprehensive care management and documented ability to achieve quality care with improved outcomes, as well as provide payers' perspectives on the specialty drug forecast and the management of hemophilia. Viewers will receive an overview of the CCSC's mission, details regarding the pilot program and other ongoing CCSC initiatives.
Viewers will learn about how to:
Apply collaborative methods that enable the benefits of the comprehensive care model provided by HTCs to be realized by multiple hemophilia stakeholders including payers and specialty pharmacy providers
Identify ways to advance the collaboration between payers and providers to provide high quality hemophilia care to patients that is both effective and reimbursable
Explain the value of collecting data to validate collaborative relationships between payers and HTCs that will ultimately benefit all parties involved, including patients/members
Who should view: This activity is designed to meet the educational needs of managed care payers and specialty pharmacy professionals, medical directors, pharmacy directors, and other health care professionals with an interest in the management of patients with hemophilia.
Edmund Pezalla, MD, MPH Former National Medical Director for Pharmacy Policy and Strategy Aetna, Inc.
Michelle Witkop, DNP, FNP-BC Nurse Practitioner Munson Medical Center
Click the images below to download the linked fact sheets and resources.
CCSC Executive Summary
Overview for Hemophilia Treatment Centers
Awarding Winning Poster Presented at the National Association of Specialty Pharmacy 2017 Annual Meeting
FACT SHEET: CCSC Benefits for Providers
FACT SHEET: CCSC Benefits for Payers
FACT SHEET: CCSC Benefits for Employers
CCSC Resources List
Cost Savings Worksheet
NHF on Accumulator Adjustment Programs
Article in the Journal of Managed Care & Specialty Pharmacy (JMCP): Hemophilia Management via Data Collection and Reporting: Initial Findings from the Comprehensive Care Sustainability Collaborative
CCSC Inhibitor Case Study
Poster presented at the AMCP Managed Care and Specialty Pharmacy Conference 2017 Improving Payer-Provider Collaboration and Data Reporting for Hemophilia Management: Metric Development for Quality Improvement